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ASHA (American Speech-Language-Hearing Association)
ASHA, a professional, credentialing association for audiologists, speech-language pathologists, and speech, language, and hearing scientists, maintains a detailed web site with a reliable consumer section, as well as information for the health professional.
http://www.asha.org/
Asperger Syndrome Coalition of the United States
This national non-profit organization is committed to providing the most up-to-date and comprehensive information on Asperger Syndrome and related conditions, including: Pervasive Developmental Disorder-Not Otherwise Specified (PDD-NOS), High Functioning Autism (HFA), Nonverbal Learning Disability (NLD), Semantic-Pragmatic Disorder and Hyperlexia. The organization maintains a web site with fact sheets, resources and educational material about Asperger syndrome and related disorders. http://www.asperger.org/index_asc.html
Autism Society of America (ASA)
Site has educational information on the condition, lists of related organizations, research updates and advocacy issues.
http://www.autism-society.org
C.H.A.D.D. (Children and Adults with Attention Deficit Disorder)
Excellent site provides access to research and treatment data, information on disability issues, fact sheets, location of local chapters, a chat room and links related to ADD.
http://www.chadd.org/
Child & Adolescent Bipolar Foundation
Dedicated to the early intervention and treatment of children's bipolar disorder, the foundation has information sheets and web links to medical sites, as well as related organizations. Medication information, health insurance issues for children and an online support group are also available. http://www.bpkids.org
Children with Diabetes
This colorful, upbeat, activity-packed site is loaded with information for adults and children on juvenile diabetes. Includes a chat room, nutrition information, specialty camps, research and advocacy topics. Easy-to-navigate site includes a good internal search engine.
http://www.childrenwithdiabetes.com/
Developmental Delay Resources (DDR)
Nonprofit organization provides a web site with information, networking opportunities and current research on children with developmental delays in sensory, motor, language, social, and emotional areas. Numerous links provided.
http://www.devdelay.org/
DB-LINK
DB-LINK, the national information clearinghouse on children who are deaf-blind, identifies, coordinates, and disseminates information related to children and youth who are deaf-blind. DB-LINK is a collaborative effort of the American Association of the Deaf-Blind, Helen Keller National Center, Perkins School for the Blind, and Teaching Research.
http://www.tr.wou.edu/dblink/
disABILITY Information and Resources
This extensive site, maintained by a quadriplegic, contains links to a wide range of online resources relevant to physical disabilities, including political information, newsletters and newsgroups, support groups, organizations, legal resources, information on non-online resources, computer accessibility products, travel, university disability information, toll free phone numbers, and more. http://www.makoa.org
Disability Rights Education and Defense Fund, Inc.
DREDF provides advocacy and legal assistance to adults or parents of children with disabilities. Site features legal issues and legislation, a newsletter, related web site links and a hotline. http://www.dredf.org
Epilepsy Foundation of America
A national organization, EPA has extensive information available online, including fact sheets, latest research news, medications and advocacy topics.
http://www.efa.org
International Dyslexia Association (IDA)
This international, non-profit organization has an easy-to-navigate web site containing basic information on the disorder, conferences, local support groups, research and legal issues. There is a special section devoted to children and young adults.
http://www.interdys.org/
Internet Resources for Special Children (IRSC)
Maintained by a parent of a special needs child, the site features a well organized, extensive list of annotated links. Topics include adaptive clothing, travel, legal issues and recreation.
http://www.irsc.org
Juvenile Diabetes Foundation International
International in scope, JDF's web site has sections on latest research, on finding local chapters, on daily care and treatment information, on coping with emotional demands and on health care techniques to prevent onset of complications.
http://www.jdf.org/
KidSource Online
A parent group created an online resource for parents and caregivers that primarily emphasizes children's health and education issues. Numerous articles, resources and information on learning and physical disabilities are available. The internal search engine aids in the site navigation and can also search other selected LD sites.
http://www.kidsource.com/
Learning Disabilities Association of America
Nonprofit, volunteer organization's website has fact sheets, a bookstore, research bulletins, and organization contacts.
http://www.ldanatl.org
Learning Disabilities OnLine (LD Online)
This extensive site covers learning disabilities. An internal search engine provides quick navigation. KidZone offers a special area designed for children and young adults. Some information is available in Spanish.
http://www.ldonline.org/
March of Dimes
An organization dedicated to birth defect prevention and proper prenatal care, the site has health statistics, informative fact sheets on birth disorders, reliable links to other sites, a resource center for personal information requests, referral services and access to community based programs on prenatal care. Some information is available in Spanish.
http://www.modimes.org
National Association for Rare Disorders
Web site has excellent information on rare, genetic diseases and disorders. Some information is available for free while other portions require payment. ValleyCare Health Library has access to the restricted database. Tri-Valley residents can contact the librarian about a search of NORD's extensive database.
http://www.rarediseases.org
National Center for Learning Disabilities (NCLD)
Resources and links are provided for such topics as LD evaluation, legislation, advocacy, innovative programs and other referral services. Current news items are featured along with a list of national organizations.
http://www.ncld.org/
National Down Syndrome Society (NDSS)
Web site features an education section, research news, referral services and advocacy issues. http://www.ndss.org
National Father's Network (NFN)
The National Fathers Network (NFN) provides advocacy, resources and support to all men with special needs children. Web site provides links to local support and resource groups, a newsletter, personal stories by fathers and links. Some information is available in Spanish.
http://www.fathersnetwork.org/
National Federation of the Blind
Founded in 1940, the National Federation of the Blind (NFB) is the nation's largest and most influential organization of blind persons. The site is extensive with educational information for the general public on blindness, as well as specialized sections for the blind. Areas include information on state chapters and affiliates, advocacy issues, referral services, publications about blindness, education needs, job opportunities for the blind, aids, appliances and other adaptive equipment for the blind, and legal issues. http://www.nfb.org/
National Information Center for Children and Youth with Disabilities (NICHCY)
This is a national information clearinghouse for educational rights, early intervention issues and other information needs relating to children and youth with disabilities. NICHCY has full text fact sheets available for printout. Services include personal responses to specific questions, referrals to other organizations/sources of help, information packets, NICHCY publications, and technical assistance to parent and professional groups. Some Spanish content is provided.
http://www.nichcy.org/
Prader-Willi Syndrome Association
This web site maintains a wealth of information on PWS, a genetic developmental disability, including personal stories, research news, clinical trials, a newsletter, free brochures and other reading materials. http://www.pwsausa.org/
Spina Bifida Association of America
SBAA web site promotes prevention strategies and provides facts on SB, a newsletter, local chapter contacts, medical updates, legislative issues, and useful links.
http://www.sbaa.org
Tourette Syndrome Association
Informative site has current TS news and events, research and treatment articles, and resource materials for parents of TS children to aid in education rights, social issues, health insurance and other TS related problems.
http://www.tsa-usa.org
United Cerebral Palsy National (UCP)
Detailed web site contains fact sheets on UCP, local UCP groups listed by state, legal information, news articles, education issues for parents, assistive technology, and other advocacy needs. http://www.ucp.org |
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